When Eden was born and we informed the doctors that we wished to bring Eden home, we were told that if he survived he would be unable to move and would spend all day staring at the ceiling. Well Eden has never stopped proving them wrong as he is an incredibly intelligent and happy four year old.

 
He is fantastic at using technology and is learning to use a communication device. He also loves to play games on the Nintendo wii and his portable playstation. This ability to use the “nunchuck” controller on the wii has helped Eden to prove his driving skills and he has been granted the funding for a motorized wheelchair. While this will provide him with much more independence we will be unable to transport his new chair in our car and as he is growing bigger and bigger we will also be unable to continue lifting him in and out of it. Therefore we have set up a charity for Eden to help raise funds for a vehicle that can be converted for a wheelchair as these cars and their conversions are very costly.

 
Our life with Eden is complicated and at times exhausting. A simple shopping trip can fill a whole day. However, Eden is such a pleasure and we enjoy every moment we share. Eden is an incredible little man who makes all the ordinary things in life something special. We consider ourselves to be truly blessed.